🎭 Culture 1d ago · Grace Ebert

A Rare Disease and Analog Photography Merge in a Portrait of Self-Discovery

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A Rare Disease and Analog Photography Merge in a Portrait of Self-Discovery
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“Everything Twice” is a quiet meditation on disability and the ways we orient ourselves in the world. Since childhood, Cy Kuckenbaker noticed that one of his eyes drooped, something he attributed to a snowboarding accident. But doctors quickly dismissed that theory, and after innumerable tests and many, many years, the photographer learned he was born with a rare disease.



Kuckenbaker chronicles this realization alongside a slow, analog process he began to combat burnout. Utilizing

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